Ava had a great day. Was a little fussy but her trach needed to be changed because it was slightly plugged. It got changed last Thursday, so it had been 5 days. Something to keep in mind that it can make her unhappy because her airway is smaller. Ava went up to 40 ml of food. The GI doctors don't think there is anything abnormal with Ava's tummy. Just that she has a lot of gas so we think we should give her mylicon around the clock.
I spoke to another mom about having a critical care child and we discussed the home care nurses. She used to use our agency that we are going to be using, but now she uses Medicaid nurses. We did have an offer from the nurse that has taken care of Hunter Kelly to take care of Ava one day a week. Unfortunately, our home care agency will not work with Medicaid nurses. I have heard different things like it's our decision since Genesee County allows private duty, but I also heard that they can decide to come off our case if they don't want to work with private duty nurses. We do have 1 full time night and day nurses and 2 night nurses and 1 day nurse when needed. This can change if they get a client before Ava comes home. We should get definite answers for nursing next week since it will be 2 weeks that Ava is coming home.
Thanking God for Ava's strength and praying for Ava to grow her lungs and for great home care nurses...
2 WEEKS! soo happy for you!..don't let anyone put seeds of doubt or fear in your heart. Your advantage through all this has been your faith and the promise and fact that God has walked you through every obstical and every triumph. He will continue to be with all of you at home also. Listen to your mom's-tuition as His voice directs and you and Anthony will do great.
ReplyDeletelove, meagan