Day 372

Ava had a good night. She had her typical upset morning and when she awoke this afternoon she had a little snit again, but nothing too dramatic. All of which coincides with her having gas or to poop. She is up to 39 ml of food. GI took a look at her today as well. Her CO2 was 65.

I talked to another Mom of a critical care child and she put some fear into me about taking Ava home. She said that car rides are scary and that her son's first one wasn't good because he turned grey on the way home and they were only 15 minutes away. We have a 45 minute drive. But there is nothing we can do but take our beloved daughter home and continue to fight with her to get those lungs to grow. God has protected her and he will continue to do so. We are also getting trained as much as possible. It's frightening to not know what your life will be like in less than 3 weeks and how it will affect five people as well as my parents.

Ava weighs 7.30 kg = 16.09 pounds, length 66.5 cm = 26.18", head circumference 42.5 cm = 16.73".

Thanking God for protecting Ava and praying for strength and great nursing for Ava...