Ava's blood gasses were both 49 today. Really good, but she still is being heavily sedated. I decided to come in and be more active in Ava's care. I washed her up, changed her trach and trach ties. I am going to wash her up and change her trach ties every day. I also wiped down her room again as well.
I spoke with a "Family Centered Care Coordinator" today about our past issues and she said she could help us with them. She was also going to get a couple families talk with us about their past issues and their child coming home. I also talked to the discharge planner about training on everything we need to and she said she would get it moving. I finally feel a little bit relieved. Still don't exactly feel very trustworthy of the hospital but maybe things are moving in a better direction.
Ava weighs 5.48 kg = 12.08 pounds. Not sure how much of that is real weight or her retaining water.
Praying for Ava to be healthy and come home...
Sounds encouraging with the Family Coordinator, and you and Tony being active in Ava's care. Still praying..Nancy R.
ReplyDeleteAnn, as always you are a wonderful advocate for your family. It is a shame to have to fight so hard sometimes with the staff. You are a wonderful mother for your three blessings. Love, Maureen
ReplyDeleteYea Anna, I am so glad you are taking over, and keeping her clean. Ava must feel so much better with you around. I see Ava going home sooner than you think.
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