This blog is all about the life of our beloved daughter Ava, whom we don't know how long will be on this earth. We pray every day for God to give her more strength for her lungs to grow and live longer than any of us.
Monday, September 20, 2010
Day 239
Ava's gas was 68. She had a pretty good day and slept most of the night. She was up a couple of time for about 15 minutes or so and someone also woke her up but she slept most of the night. She has been very happy and loves to smile and make funny faces.
They are setting up a meeting for Anthony and I to discuss Ava's steps. Doesn't mean she is going home soon, they just want to meet after another month (or so) has gone by. Her doctor on this week is concerned about her growth and that she hasn't had much. She hasn't grown in length and she has only grown .5 cm in head circumference. She had the endocrine docs come in and they said they were not concerned and they will check on her again when she is home. But Ava does really need to grow. She hasn't been having any of her "spells" where she desats and her heart rate goes down. That was one thing that Lung Center said cannot be happening for her to go home. Well, it's not, so let's roll... ;)
Ava weighs 5.36 kg = 11.82 pounds and her head is 38.5 cm = 15.16"
Praying for Ava growing...
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