Ava had a good night but did wake up at 5 am. We had a great day with her and she was very happy and smiling. We had our planning meeting and it went really well. We have a tentative date of April 5th which is the day before my birthday. We are waiting to see how she will do without having a dose of Lasix (dieuretic) a day. She will be off of the Lasix on next thursday. She is also going to be weaned on the steroids and we will have to see how she does on that. Ava will also get an IVIG infusion before she comes home and then we already have an appointment for the IVIG in May. There are a few other procedures that Ava will have to go through that don't sound very easy like checking her heart by going through her veins. My poor baby, what she has to do to just live.
These balloons were given to Ava from Hunter Kelly from heaven and the Kelly family. It was so sweet and Ava had so much fun playing with them (we had lots of fun watching her). Jill has totally blessed the world with Hunter's story and I encourage you to pick up her book: "Without a Word".
Ava weighs 7.8 kg = 17.20 pounds.
Thanking God for Ava's progress and praying for protection around Ava...
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