Day 422 - 2 weeks until Ava comes home... God willing

Ava had a good night and was up until 10pm. She even woke up at 6am. She was also a bit upset around 7 am and the nurse bagged her a couple of times. Ava's sats were just 88 but I guess she was crying and the nurse didn't know what to do. The nurse eventually gave her tylenol and Ava calmed and went back to sleep. Ava probably just wanted to get up and play. She did have two spit ups and two stools. She seems to be ok off of the Lasix (diuretic) as of now. She is also down to 2 mg of her steroids for her lungs. We need to get her off those and see how she does. Please pray that we can make that happen. Overall, she had a great day and was laughing so hard and smiling so big when I was there. Speech therapy came by and fed her some applesauce and Ava loved it. She didn't spit it up either.

We also got her actual home vent delivered today that we have been waiting for. The vent she is currently on is the hospital's "home" vent. Lung Center will be setting her up on her home vent on Thursday.

Thanking God for Ava coming home and praying for strength for us all...