Today started off fine when I called for Ava. But when we went in to see her, the hole had again reopened. The doctor told us that if it doesn't close permanently that she will surgery. The surgeon is in Rochester, so he will either have to come to Ava, or Ava will have to go to Rochester, which is dangerous. She would also have to stay in Rochester for 2 days till coming back to Sister's. Either way, she would be out for two days after surgery. We are praying that she doesn't need it and the heart stays closed. She will get another echocardiogram either Thursday or Friday. They did find out that the hole is "small" compared to the size of "moderate" before. The doctor also said that her lungs are so small and that we have a long road to go on those as well. If she ever gets pneumonia, it could be fatal.
Today was very hard and I have been a tad bit more emotional than normal. I just need this to get easier. Anthony is leaving tomorrow for Vegas and he won't be back until Saturday afternoon. I am hoping everything will be fine while he is away so that I can handle all of it. Ariana also wasn't feeling well today. Anthony took her to the doctors and she has an ear infection and is having asthma problems. At least they didn't send her to the hospital.
They also had to put another line in her foot to draw blood. Her bilirubin is looking better and she was getting more blood again today.
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