Day 30

Today was the first 24 hours of Ava's steroids and also the first day of her full feed of 15ml. The steroids finally started taking effect this morning when her gas was in the 30s. The gas (CO2) is usually in the 50s and 60s. A good CO2 is between 40s and 60s. So that meant they needed to turn down her settings. She later got a gas in the 20s so they turned it down again. Tonight she had one in the 40s. They are taking her gas every hour right now to keep up with her change in settings on the oscillator. Yeah! Later tonight, her CO2 was in the 40s, so they adjusted the amplitude to 19. She hasn't been at that setting in awhile

I went in early this afternoon to see Ava. I was changing her diaper when her O2 saturation (which should be in the 80s and 90s) went down to 40. It scared me because her skin turned a grey color. She looked the color that ET did when he was dying. I did not like seeing her that way. She went back up in a bit and she was her lovely pink color. She is down today to 1lb 9oz. She lost 1 oz. but they are not concerned about it unless it happens frequently.

I watched the Duggars tonight (19 and counting), and basically everything they are going through (minus their baby's tummy troubles and not being able to eat) seem to be the same thing that we are going through. They are on 4 weeks and you can see their baby get an x-ray, just like Ava gets. Pretty much everything is the same, so if you watch the show, you can see a bit of what's going on for us.

Hoping for a great night and for the settings to go down dramatically... Tomorrow is exactly a month from her birth!