Ava had a crazy day. She pulled out her trach on the night nurse last night at 1 am. She spit up her Prevacid and possibly formula around 8 am. Her feeds were off between 9 am and 11:45 am and got breast milk for about an hour. After she got her breast milk, she got her formula and about 2 pm she spit up a few times and would be pulling at her stomach and she would cry in such pain. She pulled out the extension on her "G" and it started gushing bile and blood all over the place. I called the doctor because of it and he wasn't concerned but I did get her temperature and it was fine. She would then start cramping up and screaming in pain. I finally held her in my lap and patted her till she fell asleep. She woke up after an hour and was still in pain, but I patted her back to sleep and she slept for about 45 minutes more. She still woke up very upset and we took her upstairs to get washed up from spitting up so many times. She was very upset and would arch her back and at one point she arch it and fell back and hit her head on the changing table. She seems to be ok from it and I rocked her before putting her in bed. After that she was all smiles. Eventually she went to sleep but she woke up with horrific gas pains. She finally stooled but it continued on for about every 5 minutes. I gave her the nightly dose of Prevacid and she didn't spit anything up. Thankfully Ava's ICU night nurse was here to help and she saw that her pain was more extreme than what she had recently in the ICU. I decided to call the doctor and we thought it was the formula especially because she didn't have any problems when I put her breast milk in tonight. He gave us orders to start Pedialyte until morning when I can give her some breast milk. Then we will go to the doctors tomorrow and maybe try the Peptomen Junior back again. The Peptomen Junior could possibly be the whole problem she has been gassy this whole time but hopefully we can see what happens tonight.
Thanking God for strength and praying that we can figure out what is wrong with her belly...
Ann, we are praying continuously for your family. You are a real testimony of faith and you are such a wonderful mom.
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