Ava had a great night and is still on Peptomen Junior and her "G" (tummy) is to gravity. The doctor said that she doesn't have a lot of juices coming out so we don't need to replace the electrolytes. She was still positive of fluids. She had a great day but she did spit up clear foamy stuff again out of her mouth and her "G" was down to gravity. It was the same spit up she had at home. We actually spoke to someone that is from the Oley Foundation that helps with questions for tube feeding and she told me that it sounded as if Ava had bacteria overgrowth. When I came in and spoke with Ava's nurse she had called a nutritionist that is formerly with Children's and she had told her the same thing. Very interesting! It wasn't a coincidence, it was God. If she just heard it from me, she might not have believed it. She did have 3-4 watery stools and they smelled even more foul than they normally do. We really need to figure out what's going on. It's interesting that two people that haven't even seen Ava can possibly diagnose this to be the problem and a team of people have not even thought of this. Her GJ site also does not look good it's being pulled on side from the hook up to drain her "G". The woman from the Oley foundation also said that they should be giving us Foley bags to drain her, not just a tube that can dump over. You can attach the Foley bags to her clothes or high chair etc.
Ava is on 39 mls 24 hours a day with no breaks.
Thanking God for Ava and praying that we can get her GI figured out quickly and easily...
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