We made it through the night and she was great. We had a new nurse to learn the ropes last night and she is on tonight. Hopefully everything will go smoothly. We had a pretty good day. Ava did get fussy later but I think it was because she was tired and because the site where her GJ is sore. It really has a lot of granulation and the doctor from the hospital didn't look at it the day before we left. Our pediatrician also spoke with Dr. Rossi and Rossi said he can't accept any new patients right now. So now the ped is going to speak with some doctors in Syracuse that Rossi referred him too. He also said that we should not be dumping her gastric juices out but giving them back to her in her J, so that is the new thing we need to do. It will cause her more problems if she doesn't have them including her body making more. Oh the trouble this has caused... Otherwise Ava seems to be happy here, loves mommy holding her and her sissies LOVE to play with her.
Thanking God for Ava being home and praying for significant healing...
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