Anthony and I are sad today because a week from today is Easter, and Ava probably won't be home. Can our hearts possibly break more? When will this get easier? 448 days of hardship plus the pregnancy. Ava had a good day but we were recording what happened during the day. She did gag a few times, sometimes she spit up, she also desatted to 80. So it does still happen even when her "G" is to drain/gravity. It might not happen as much, that I don't know yet without documenting for sure, but we will find out. Unfortunately, the whole "G" situation has become an obsession for the staff and I still have seen Ava do the same things she did at home. I think what happened at home is still capable of happening. I spoke with the doctor about the Bacteria overgrowth and he made it sound like it's not real and he doesn't know much about it anyways. He doesn't want to do anything if we are just going to go to Strong.
We have requested to be transferred to Strong as soon as possible. Hopefully they will have a bed open this week so we can get seen by there GI department and get home. Hopefully it is a slight modification maybe with acid reflux and we can head home. Wouldn't it be grand if Ava got to come home for Easter? I might be dreaming... Please God help us...
Has anyone gone to Strong? Any good reviews? Google has quite a few bad reviews but it's not of the Children's Hospital.
Thanking God for Ava's healing and praying that we can have more strength and get Ava home...
No comments:
Post a Comment