Day 443

Ava slept all night very soundly. She had a couple of desats, but overall came back up on her own or had to be suctioned. Ava had her radiology test this morning, which I didn't make it to the hospital in time for. They did see the barium go into her tummy and out her intestine just fine. They also saw her reflux the Barium but the GI doctor wasn't concerned. She said all babies have acid reflux and she is on the right dose of Prevacid. We called Dr. Rossi's office out of Rochester to get a second opinion because it is very bad if Ava refluxes into her lungs. Her feeds were started back up to 10 ml per hour, and every 2 hours, they went up 10 mls. We should be up to full feeds at this point. We also changed her formula to Pediasure which is lactose-free and not 100% whey. Anthony does not tolerate whey and I was allergic to dairy products as a child so hopefully this will help with some of her gas pains she gets at night. She still has diarrhea stools but hopefully that is only the barium coming out. Her abdomen measured fine and none of her tests came back positive for a tummy bug. But GI does think she did have some sort of tummy bug. We still have no idea where the blood came from or why she exactly turned blue on Sunday morn.

I also spoke with her cardiology doctor about her heart rate being lower and he said that it was normal after a traumatic event. He also said that he has seen this happen before, we are not doing a bad job, and we can get through this. The PICU doctor said today that if Ava's well through the night, we can go home tomorrow. Please pray for that to happen and we can stay home for good now with NO chest compressions.

Thanking God for Ava being better and praying for peace and discernment...