Wednesday, April 21, 2010

Day 87

Ava's gas was 72 this morning. Not good. She also has been at 85% O2. They put her on higher tidal settings. Tomorrow is her eye exam so pray for amazing clarity in her eyes and peace for Ava.

Ava weighs 5 lbs 2.5oz.

I spoke to the doctor this evening and he said that he still doesn't know how she is going to turn out. They are going to give her at least to 42 weeks before they will put a trach in her throat. I asked worst case scenario would be and he said that she could be on a vent for a long time and may not ever come home but stay at Children's. He said that she looked like babies from pre-surfactant days. Those babies would be on vents forever and may not come off of one. Some kids are on them until they are 2.

I really don't know what to think. This is a crazy nightmare that I wish we could wake up from. But we still have hope that she will get better soon and come home to us. After all, she is "Amazing Ava."

Praying for her lungs and eyes...

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