Ava's gas was 59 this morning and later it was 56. That is really good for the amount of CO2 in her lungs. Her O2 saturation though is at 100%. She has been satting in the eighties most of the day, so they are hoping this will get better. They have started giving her the steroids through her IV and changed her antibiotics to something different. He said that Ava was on a tightrope and getting an infection can put her either way. They still haven't gotten results back to determine if she has an infection.
Alexandra and Ariana got to come in today to see Ava. We were finally a complete family again. The nurses couldn't wait to see the girls and they made little baby bags for them that contained diapers, a bottle, the leads that go on Ava's chest and a pacifier. Ariana was telling us how cute Ava was. She wanted to kiss her, but she couldn't. The girls brought the toy they bought Ava a while back and Ava gave each of them a gift. The girls were wonderful inside and Ava even had her eyes open so she could see them. They even got to meet the neonatologist.
I spoke to the doctor again after they girls left and he said that we are in unchartered territory with Ava. He has never seen a baby that has this bad lung disease as Ava, live this long. He had no idea what was going to happen. I asked if there was any other hospital we could go to, one that maybe specialized in lung disease and he said they would be in the same dilemma as here. They also couldn't move her because she isn't stable.
Praying for a miracle, bigger than anyone ever thought we would need...
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