Ava had a rough night again. She didn't desat past 88 but she was fussy and couldn't get comfortable. She also had a few snit fits again during the day. The doctor didn't want to take her off the home vent (LTV) because she wants to see if Ava is going to get used to the vent. Ava was still breathing with her belly when I came in although she didn't have any fits this afternoon. Her heart rate was in the 180s at times and her respiratory rate went from 50s to 70s. They did get a blood gas and that came back good at 57. They also got a sample of blood to make sure she isn't coming down with an infection. She has been so tired since she hasn't been sleeping through the night. They also put an IV in her hand to draw the blood so that could be bothering her too. She keeps trying to eat it. She had two fits while I was there tonight but she is easily able to get out of them with giving her more O2 and putting the bag on her trach. Personally I don't even think they need to put the bag on, but these aren't nurses that normally have Ava. So because we changed her food and trach on the same week as the home vent, it could mean any one of those things are bothering her. Lung center will have to come in and figure it out tomorrow. I think that she may need to be tweeked in her vent settings. I also haven't gotten a smile out of her since yesterday.
Thanking God for Ava and praying that she can stop having fits and be able to breathe on her own...
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