Ava had a decent night last night. Just a couple of desats, but her nurse held off her miralax because she stooled so much during the day. She also had a good day as well. The only negative situation was that they didn't get her in to her upper GI until after 4pm. She went two days without any food during the day - from 4am until around 4pm. She even lost weight when she was weighed today. They told us she was going in later in the day yesterday and then early this morning but it never happened. The good news is her body digests normal and it doesn't seem to be any problems from her tummy down. Now, we just need to figure out her GJ drainage and see if she needs it, and what is going on when she is in pain at night. We did also see 4 teeth coming in all at the top.
We got approved for our vent training today and we will continue to be trained until she goes home. We will go on a test run with a stuffed bunny all the way to the car with Ava's real equipment to go over any possible happenings.
Ava weighs 7.28 kg = 16.05 pounds.
Thanking God for Ava's patience and strength and praying for us to figure out what pains her...
No comments:
Post a Comment