Day 352

 Ava woke up around 4 times during the night, but she didn't know the nurse very well. The nurse also only needed to pat her back to sleep. She had her rough typical morning but recovered and went to sleep in the early morning/afternoon. Her CO2 gas came in at 70 at 4 am and they got another one at 6 am and it was 63. Lung center seems to be pretty happy with her. She slept for a while and I got in and played with her and she had NO fits all afternoon and evening. Her respiratory rate was only in the 50s and in the 10s and 20s when she slept. She wasn't doing her belly breathing either. Her heart rate was a bit high in the 170s but went down in the 120s - 140s when she slept. She went to sleep around 7:15 pm and I'm hoping she sleeps all through the night without any fits and wakes up happy. If she is stable (and having no fits), we can start the clock to get her home. We can even stroll her around the PICU in her stroller and possibly bring her into a conference room for her birthday to have cake. I am very excited and encourage and hopefully her blood gasses will go back down to the 40s again.

Thanking God for Ava's growth and praying that she can become stable on the vent quickly and get home...