Day 361 - An interesting day...

Ava an ok night and had her usual fits in the morning. They are stopping her feed for fours a day, from 8 am -12 pm. They also stopped venting her stomach when she is not eating and she did really well. She is up to 44 ml of food.

Ava now weighs 7.20 kg = 15.87 pounds. She went up a little bit.

So, now for the news. I am sure you are all waiting anxiously in suspense how the planning meeting went. The meeting went great. We actually have a tentative discharge date of February 21 (my Dad's birthday). Yeah! Praise God! We have lots of things to do to get ready for her to come home. We need our back up support trained, both Anthony and I have to each (separately) spend at least one 12 hour shift with her as well as getting time with her as much as possible. We also need to completely set up her room, get in touch with VNA and have all of her check up appointments set up for after discharge. Very exciting but it will keep us very busy.

Thanking God for Ava to come home and praying for Ava's health and for her to have peace without anymore fits...