Ava had a rough night again. She slept very little starting from 7:30 pm until midnight, then up until 4 am, slept for a couple of hours and then back awake and very upset. She was pretty much upset all day. She even slept through her little party with the doctors and nurses at 2 pm. She did wake up a bit later and Alexandra and I gave her a little cake and she mushed it with her hands and put a bit in her mouth. She was very happy when we were there and she loves Ali reading to her and talking to her. We had our little party downstairs in the conference room. It was great to have a few people celebrate Ava's life but it was sad to not sing to her. We were able to come upstairs and see her play with her cake for a bit. She even did a couple of her "O" faces for everyone but she really didn't feel good. Please pray that Ava will feel better soon.
We have so much to be thankful for this past year. We are so blessed to have Ava and she has come so far. I am so glad that God has kept Ava with us and made her such a fighter. May she continue to bless the world with her joy and enthusiasm.
Thanking God for our year with Ava and praying for many more years to come...
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