Ava had a rough morning. Her heart rate was in the 190s and she was calm and basically asleep. Her sats were 95 or above and they suctioned her, stopped her feeds and her heart rate still didn't come down. Eventually her heart rate went down and she fell asleep for a short time later in the morning. She had a couple of her fits so they checked her white blood cell count and it came back as 12, which is normal. Her nurse today wanted to end the feeds being stopped every four hours and just stop them every two, but after speaking with her a bit, she had the doctor split her feeds into 2 hour periods twice a day and we will try the 4 hours together maybe tomorrow. She is now on 42 ml of feed. We also back to venting her tummy to let out any gas. I don't think that the feed was the problem since the night nurse stopped the feed at 6:30am and it didn't change Ava's heart rate. She also decided to stool later in the morning.
The doctors wrote an order for speech therapy to continue with her tasting with her pacifier. We finally got that all figured out and they are looking into her qualifying and setting up early intervention at home.
Thanking God for Ava and praying for her to get rid of the acid reflux and gas problems and have peace...
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