Day 113

Ava's gas was 69 this morning. They went up her settings a little. Then her gas was 52. Her O2 has been in the 70s today, but she is coming off her "dexs" steroids and onto hydrocortisone. She is also on 5% Nitric Oxide.

Her heart rate went up today to around 215 bpm, and stayed over 200 for almost 2 hours. They tested her to see if she was sick and a few other things and didn't find anything else wrong. They thought it could be because she had another blood transfusion. It went up again later in the day when I was there. I have never seen her heart rate that high and stay that high for so long. It definitely has me concerned. They will be taking an echocardiogram later in the week.

Ava had her eye exam tonight and he seemed to think they looked good. Still the same, but we will find out tomorrow if they looked better in a more thorough report.

Ava now weighs 6 lbs 4 oz. (She went down from her diuretic.) She is 43 cm long - 16.93", and her head is 32.5 cm - 12.80".

Praying for Ava's body to be healthy...