Ava's gas was in the 60s today but she had an "episode" this morning and they put her bpm's up to 40 and she is on 85% O2. Her gas this evening was 70, so they upped her to 50bpm. They took another gas at 8pm and it was 67.
They said she had a little bit of a runny nose so that she may be sick. She is still on steroids and they really aren't effective.
The doctor spoke to me today that we should move her to Children's Hospital. Since she isn't about to come off the vent, there isn't anything more they can do for her. She also has an air leak around the 4 (cm?) tube in her mouth and they can't go bigger since it could cause more damage. He is thinking that most likely she will need a trach. Children's will evaluate her a couple of weeks before doing that. They may try nitric oxide and more steroids.
Ava weighs 5 lbs. 13.75oz. She is eating 54ml of food.
Praying for things to get better...
I just wanted to let you know that your daughter Ava has impacted so many people. More then you will ever even know. My husband and I pray for Ava and your family all the time. Just the other day he asked me how Ava and your family was doing. He never asks me stuff so I know your Daughter has a piece of his heart as well as mine too! Many of the teens in my youth group pray for all of you as well. Thank you for sharing your life with all of us. Praying for you. I know it can be hard at times to see God in your situation..... but trust me ...he is there, right by Ava and has her and the rest of your family right in the palm of his hand. your a good and strong mom.
ReplyDelete-Mike & Amber Wing
Ann,
ReplyDeleteI can't imagine how hard this must be for you and your family. All I can say is stay strong and take it one more day at a time. You're doing great, and Stephenie and I are thinking about you every day.
Joe and Stephenie
Thanks! Keep the encouraging words coming... I never knew that life could be this hard.
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